Tuesday, February 07, 2012
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ekconovice
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n e one else feel like they need their own personal translator??

plz help my poor self esteem and let me kno f u have the same troubles as i do!!

i feel i need my own personal translator in cases i do not get the jift or even when i feel i do/am, i still @ times misinterpret what i thought i heard/understand. my boyfriend is kind and patient enuff 2 humor me and bear w my miscommunication skills whether it be in person, over phone, reading, whatever it may be...i am lucky i have someone 2 fall back on that understands i am not jus stupid or not even trying. i do not want this 2 be a lifetime burden 4 either one of us and i wanna learn better coping skills in order 2 venture out on my own and away from support. i will not always have him or someone else 2 hold my hand....any suggestions or successful stories??


anyone else hear things or gets ringing?? anyone else out there who cannot read a very in depth detailed book such as Stephen King stories, the bible, history books, etc...??? i can READ it, but understanding, comprehending, remembering and continuing on....is another story lol

anyone else out there who cannot TELL WHERE THE NOISE is COMING FROM but surely enuff, can hear it, let alone, hear it FIRST or BEST??

anyone out there who is told numerous instructions and cannot 4 the life of them, remember in order and accurately w/o writing notes down or using a recorder 2 play back on??

anyone out there w tinnitus due 2 CAPD?? or hyperglycemia?? anyone else have panic attacks or anxiety and sleeping disorders relating 2 an already difficult disorder no one in the general population/community REALIZES and UNDERSTANDS & is willing 2 help those in need, COPE WELL...??

PLZ HELP i have so many frustrations and unanswered questions and so much clarity is needed/wanted!!! i need 2 talk w those who relate or those who specialize and can guide me towards a better lifestyle dealing w CAPD. i need those who kno, 2 come out & reach out 2 me as im reaching out 2 u. Thank u 4 ur time,

Adjusting Alone in NV,

Brit


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angieandwallace
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Re: n e one else feel like they need their own personal translator??

Hello Brit!!

I hear ya!

I am an adult with CAPD - 31, Female.  It wasn't until the last couple of years I was able to put a name to it.  Finally I read a book that described it.  I was like, "Yep!  That's me!"  I think it came from being severely malnourished as a baby.  I have not been officially diagnosed because I don't have the money.... but people with the same malnutrition as me have the same problem.  (I was born in 1979, there was a formula on the market that lacked sodium chloride - which ultimately led up to the more strict formula rules we have today.)

Sometimes it just feels good knowing someone else understands, and learning what's helping other people to cope.  It's not the end of the world - LOTS of people have various learning disabilities, and the best bet is to surround yourself with these types of people.  Positive, happy people!!  Not people who wallow in their disabilities, but laugh about them and move on.

I also have trouble comprehending books, especially with lots of metaphors or artistic writing.  I prefer non-fiction or stories based on reality, because I can form pictures in my head about what's going on and understand them better.

I don't know about the tinnitus you are suffering from.  I do have hypoglycemia - but diabetes is on both sides of my family.  Panic attacks - YES!  I am a mother of two toddlers and their screaming drives me NUTS!!  Moreso than "normal" adults.  Also I get panicky from the constant noise @ work - running machines, beepers (my work has a restaurant), constantly trying to descipher what the customers are ordering.  Then the monitor displays what they've ordered in abbreviations, which requires a lot of working memory to descipher.  Accuracy is my worst problem that I have not been able to overcome.  Multiple orders at once are the worst, especially with special instructions like no lettuce, extra mayo - many of which we don't have buttons for but just have to remember.

After several months of working in the restaurant, I requested (and got) a transfer to work at night in the store part  - that was MUCH better, because there are fewer customers and less noise.  I can't tune it out sometimes, and once I get overwhelmed with it, it takes DAYS to recover from the physical and mental effects.  I do also find I have the sleep problems you describe.  Having CAPD is tough, because it seems like an extra measure of stress, for the same ammount of work, doesn't it??

I started working graveyards, which seemed to help both my sleep problems AND the CAPD from being overwhelming.  It's something you might want to look into.  The best thing is often other laborers will be working graveyards, for the same reasons... the peace and quiet, going at your own pace, and using YOUR coping strategies (making lists, etc) There is also a scientific link to staying up all night once in a while, and resetting your body rhythems, which ultimately helps fix sleep problems.

Audio problems make you want to sleep, but there is tendency of OVERSLEEP and this HAS to be avoided, I can't overstate this enough.  Oversleep is as bad as lack of sleep.

Caffiene is helpful, in that it increases circulation in the brain.  I LOVE Rockstar Recovery, because it has vitamins (but not ridiculous ammounts), electrolytes, and is sugar-free but doesn't taste nasty like most sugar free drinks.  Coffee and tea are my friend!  My brain functions MUCH worse without them.

Lists lists lists!  I cannot recommend enough that LISTS are important, and writing down your thoughts and ideas in a big notebook, that you look at every day.  When you can think in the "bigger picture" often it helps jog  your memory.  You can then remember what you want and need to do.  All your goals can be interlinked in this way.  I have hundreds of notebooks from through out my life... they are a joy to read.

And as for stress, I will go out on a limb here - I have never had health insurance due to the cost, and after seeing the effects of man-made anxiety meds and anti-depressants on my friends for their various problems, I have opted to steer clear of those.  I did recently get introduced to the concept of medical cannabis.  IF IT IS LEGAL in your state AND ONLY IF IT IS LEGAL, it is a good option to explore, as it GREATLY helps STOP the anxiety and panic attacks before they cripple you.  I'm not saying become a pothead by all means but AS A MEDICINE, used INFREQUENTLY and ONLY WHEN the stress is unbearable to the point you cannot function, it is a great help.  For me just knowing it's there and is an option, is enough to stop the panic attack.  But I do partake about once or twice a month cuz sometimes the combination of kids, work, lack of sleep, everybody else's needs, it helps me keep being productive.

NUTRITION helps, anything you can do for your brain helps you to compensate for your lack.  Green foods, green drinks, red meat (iron anemia sucks brain power big time!).  Avoid sugar highs and lows.  Just remember with the hypoglycemia - the more you train your body to expect sugar at certain times of the day, the more insulin it will pump out in anticipation for it , which results in hypoglycemia, necessitating the eating of more sugar.  It's a viscious cycle.  I am a sugar nut....of the worst kind!  Keep it in control and set reasonable limits.  Cut down SLOWLY when you feel yourself in it's grips.

LASTLY you need to come to a point where you COMPLETELY, 100% accept yourself.  This will happen when you find meaningful things to do where OTHER PEOPLE also accept you and LOVE you for your strengths.  Not just put up with you grudgingly.

So let's see... we've covered type of job, timing of job, sleep, medicating, hypoglycemia, writing things down, self acceptance - I can't think of anything else.

Good luck! 

Angie


Life is what you make it.  Everything is a choice.  Sometimes choosing what you least expect to make you happy yields AMAZING results!

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