Sunday, February 05, 2012
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Murkywater
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Hi,

Hey, I am 27 and have CAPD and wasn't diagnosed till I was half way through year 11 at High School.
So, here to learn new methods of dealing since I am looking at going to Uni soon.


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ekconovice
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Re: Hi,

same here sister smile am 28 now and was diagnosed freshmen yr in junior high...............what has been working and not working 4 u lately?!

Brit


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Murkywater
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Re: Hi,

I found that relying entirely on written matter helped me a lot with things. Considering all class rooms were noisy either that what I did was just copy notes and studied in my own time more then anything.
One other method was using a recorder and transcribing it at a later time, that worked but there are various programs now that make it easier. Haven't had a chance to look into them, but one day.
Other then reading a lot there isn't much I know that helps. Ideas and suggestions are welcome.
(should note I am male - as we tend to have a hard time focusing at times)


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ekconovice
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Re: Hi,

HELP  PLZ!! I was diagnosed w CAPD as a teen, can I get disability now @ the age of 28 or do I need to be re diagnosed as an adult?! Anyone know?!


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mommyinoki
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Re: Hi,

Hi, my family and I live in Okinawa, Japan because my husband is in the military.  Last school year I was told by my daughter's school that she may APD.  It is very difficult to get her tested over here due to a lack of abbilities to test children over here.  Things are so bad that her teacher is trying to appeal the policy that states children can only be tested once a year within the DOD school system for learning disabilities.  My daughter is 8 and is in second grade she is reading at a kindergarten level.  We have been doing the same thing for the past couple of years and nothing is working.  I am at a loss as far as how to help my child.  Any support would be appriciated.


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Cameron
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Re: Hi,

Hi, I am a 32 year old non-tradional student and mom. I was diagnosed with CAPD. I am in graduate school, but the academic road hasn't been easy for me. After years of failing classes, tests and other aspects of my life. I began on path that has led me to typing this email. I started college 5 years ago and couldn't manage to pull away from a class with a C or better unless it was gym or an online class (mental note). After failing college algebra three times and physics twice, I knew I had to figure out what was happening with my brain. What wasn't I getting. I started off going to a local University that tested for Learning disabilities. After $500 and nine hours of testing it was confirmed that I had a low working memory and psycho-therapy would be the key to helping de-crease stress. Apparently, stress causes the brain not to hold short term memory. So I did therapy, yoga, meditation. Gained many tools from therapy to deal with stress and time manage. However, I was still failing classes. I would study one class for 6-8 hours everyday, make flashcards, take breaks, listen in class,I had a note taker, and would take notes with a smart-pen. I seemes to always lose the msg. When I would go back and listen to my lecture and compare my notes and the notetakers. I would find parts that I missed of the lecture. I would get lost in the details,especially if there were step after step, after step. I had a quite place to study. I was doing everything I was suppose to do. The smart-pen was genius (a pen that records audio and script, there are special notebooks to use that download to your computer). It wasn't until a summer bike ride with a friend that said to me, "You only hear what you want to:" That statement rattled my bones. That night I googled processing, a few times...but came up with nothing. Then I googled processing:hearing and there it was in roman font staring back at me CAPD. The next day I found an audiologist that tested for CAPD. I've noticed with my research, that hearing test's are a breeze for people with CAPD, but when the test moved to  processing, working memory it was like my brain was swiss cheese. After a few hours of testing, the audiologist consulted with me about CAPD. From here is where my research began. There was a tone of info for kids, center's all over the country, websites, computer software, etc, but little info for adults. I spoke  to over 20 therapist in the field and NO-ONE worked with adults. I began to melt, I couldn't believe finally I had the key, but no door. Until I came across the book (audio), The brain that changes itself. Holy cow could it be true? Our brain's  are like plastic. There's a term called neuro-plasticity in lamen terms: It's how our neuron's fire together is how they are  wired together. Yet are plastic and can be changed or I should say altered. I COULD"NT believe it. I could change/ alter my brain. After much searching I finally found a speech-language pathologist at a local university that has a desire to help adults with CAPD. I am here to tell you. You can change/alter your brain, not completely, but you CAN find a way to learn and retain. I have complied a list of things that have worked for me. I still have a long road ahead of me, but am here bc I believe the brain is powerful and can be programmed with the synapes we have, just in different ways.

First, meet with an audiologist that specializes in CAPD, or knows how to test for it.
Second, find a speech language pathologist, (meet with a few bc, everyone offers something different). Contact a local university the speech language department and find out about therapy available. There are students that work in the clinic that are there to help. The session's should leave you feeling excited about learning, listening and rejuvinated. There are many techniques that can help you or atleast help you discover what does works for you.
Third, get tested for LD, you will need the documentation, if you are a student or perhaps for other work related testing CPR trainings etc.
If you are a student accomendation(s) can be: selective seating:out-of-class testing:private tutor: notes given to you prior lecture:extra time. I would contact your school for accomendations and set up an appointment with someone that can help you advocate for yourself too. If you find a speech-language pathologist, they can send reports to your school/job.
Other ideas, if you have issues with reading: books on audio are the best advice, memory: repetion is key.  Put flashcards everywhere, have conversations, in areas that are not so noisy, read lips, and start to change the wiring of the firing with your neurons. Lastly, if you were standing in front of a budha, and said," Budha, I have CAPD, I am slow, I this...they would respond," you are perfect, bc this is YOU". Be mindful of what works and doesn't work for you. Have awareness, and advocate for your uniqueness.

Watch Me Go,
Cameron


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Mom2Boys
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Re: Hi,

Wow, Cameron, thank you for your amazing post! I wonder how many other people like you have CAPD and don't know it. It's such a challenge, yet it sounds like you've come through with flying colors. Your recommendations for getting help are great. Thank you so much!

Bonnie


Mom of 2 boys: James (6 & CAPD) and Michael (3)

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