Tuesday, February 07, 2012
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duranie
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Well, we got the test results back today...

smile

As we already knew, there was nothing wrong with his actual physical hearing.  The diagnosis is that he scored mostly around 1 standard deviation from the mean, up until they got to the SSW test.  He got greater than 1 deviation for right non-compete and left non-compete conditions and greater than 3 deviations below the mean for the right compete and left compete conditions.  He repeated the words in reverse order more times than the normal limit for his age group.  His order effect score was greater than normal too.  His ear score was also greater.  They said he is right ear dominant (which I understand is typical for kids before puberty). 

The findings state that he experiences greater difficulty than his peers with auditory processing specifically with dichotic listening, sequencing, and auditory memory.  They said this can affect his ability to understand and follow spoken directions.  He is at risk for being unable to process auditory information in competing listening situations, and may have difficulty understanding speech in degraded listening situations such as when there is more than one person speaking. 

The audiologist recommends FastForWord to improve his "phonemic extraction".  She recommends also that he be put in a resource class for eliminating distractions and providing individualized attention especially during test taking if it's difficult for him, (he's already told us that other kids talking in class bothers him if he's trying to concentrate).  She recommends using more than one way to deliver instructions with more "sensory modalities" like reinforcing verbal instructions with text or visual info.  Keeping him away from high traffic areas and noisy areas is also stated in the report.  She highly stresses positive associations in his learning, by using familiar things with new things being taught to bring his confidence level up.  Things he succeeds in should be interwoven to help that too. 

What made me cry is one thing she listed "For the child with auditory memory problems, there is often no realization that he is missing information". This is so true of our kids.  It's not their fault they don't understand.  I hate the thought of how many years he suffered not knowing what people were trying to tell him, and not understanding why he would get in trouble for things that weren't his fault.  I've always made excuses since he was young, and have always defended him by saying "there is some learning issue he's got that we just can't get diagnosed, so he needs to be understood".  Now I'm glad I kept that mindset.  I took the audiologist's report, with a copy of the medical information release, to the principal of the school.  My husband and I made a cover letter with it, making it a formal request for an IEP.  So she got the test results within 4 hours of us having it.  If I don't hear back from her early next week, I'll be calling.  I want this started ASAP.  He's already waited long enough for this diagnosis, I don't want to wait anymore.

I hope I can sleep better now that we know all this.  I've got the biggest migrane from crying multiple times today.  Thanks for all of your encouragement and kind words, if anyone has experience with the FastForWord program, please let me know.


Diana


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baberry
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Re: Well, we got the test results back today...

congrats on the news.


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duranie
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Re: Well, we got the test results back today...

Thanks!  Now the real fun begins, making sure teachers use the 504 program that's been set up and checking our son's homework EVERY night.  Last night he brought home classwork that he was suppose to finish and had no reference material at all on it. How do they expect him to know the definitions if there's no place for him to look back on it?  Sent another "why isn't there" email to the teacher.  Sometimes I really get sick of that, this teacher is usually pretty good about things like this.


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Mom2Boys
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Re: Well, we got the test results back today...

Congrats on the diagnosis, Diana! I know the HUGE sense of relief that brings! It confirms your intuition and what a great thing that you followed through and pursued it. Your son's diagnosis is very similar to my son's. James also got 3+ SD away on the SSW. His greatest challenge is hearing in competing noise.

As for the school, IEP, 504, etc... I have not found that you can set it up and off it goes. You will now have to become a diligent babysitter for all school personnel that interact with your son. You have to constantly watch, check, and make sure that what your son needs and is entitled to is followed through on. A good example is our son is suppose to have an accommodation of oral spelling tests since he has problems with writing (dysgraphia). He wasn't being given the accommodation, and I had to remind the teacher. She's a great teacher and I know she read his IEP, but she has 22 other kids to watch over, so she can't remember everything. And there will be other school personnel who won't follow through for no good reason. Like when our son's FM system broke, nobody did anything for 4 days until I checked on the status of having it repaired. It had just been sitting there and nobody took care of it and nobody seemed to even know who should take care of it... so always keep watching and checking.

I'm wondering why your audiologist didn't recommend an FM system. That has really saved our son. It's been broken a couple times, and the difference in his ability to focus and pay attention was very noticeable. He's got the kind that is a speaker on his desk.

Congrats on your great news! I look forward to hearing about your son's progress!
Take care,
Bonnie


Mom of 2 boys: James (6 & CAPD) and Michael (3)

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duranie
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Re: Well, we got the test results back today...

I know it's going to be a work in progress.  One of his 4 major teachers was giving me grief before this 504 meeting, and she seems to have come around.  Another teacher (male) has this "kids need to be self-motivated" thing that is really freaking bugging me.  Our son brought home a worksheet the other day, and when I asked him where he's suppose to get the answers from, he said "I don't know".  When I emailed this teacher (a substitute for one on maternity leave) he emailed me back this stupidity...

" I had explained to all of my students early on in the year to use resources such as dictionaries, the internet, and their parents to help with their work if they are unclear on what they are supposed to do.  This is especially true with vocabulary.  He said that he used the internet to find the definitions, which is exactly what he was supposed to do.  He was not supposed to know the definitions of the words; he was supposed to use whatever resources to find them, and he succeded in doing so.  Giving out the definitions to the students would have been counter-productive to the idea of building study skills and independence.  This self-advocacy was also discussed in the meeting, and I am happy to see that he is able to use these strategies at home.  He will forget things from time to time like any other sixth grader, and his ability to solve problems like this on his own, like he did with this assignment by working with his parents and the internet, will assist him greatly in the future."

The attitude of the self reliance and self advocacy is good in theory.  We CAPD parents know that our kids won't always speak up when it comes to things they don't understand or don't know.  This teacher, however, doesn't have enough experience yet to know this.  I asked our son repeatedly if he knew where he was suppose to get the definitions for this worksheet, and he didn't.  Different teachers do different things, and I can't expect him to remember which teachers use notes/worksheets/books for answers to homework.  One teacher gives out definitions in class using notes, another teacher has handouts or uses past worksheets for reference.  This poor kid has to not only remember the work, he has to remember which teacher does what for getting his answers?  Ridiculous!  Now I know this one teacher expects the kids to find the answers on their own, I guess I need to make some kind of freaking reference list of my own just to know what these teachers are doing! 

Now this email came yesterday from his Social Studies teacher, another male teacher, different from the first teacher I discussed. I emailed this teacher and asked about a C he'd gotten in one of his quizzes.  It was a definition for a word he apparently didn't remember. The email before this had me thanking this teacher for his helpful attitude....

"As the vocab quizzes get larger, I will give them a study guide, especially for the words that are not in the current unit.  I think it would turn into a disaster for most students if I did not.  I'm sure it would have been a disaster for me at that age, too.  smile

The quiz was given by projecting the question on the front board.  I read the question and all possible responses two times.  After I read it, the question stayed on the projection screen until everyone was finished (putting their head down was their signal to let me know they were ready).  Maybe you can talk to Matthew about this too, but, in the future, if I give a quiz on the projection screen again, do you think it would be more beneficial for him to have a hard copy in front of him? 

As always, if you have any questions, feel free to email. smile"


Isn't it refreshing to have a teacher who cares so much that he'd be willing to change how he does things in class to suit one child? When I thanked him and told him I wished all the teachers had his attitude, he said this in response...

"It's no problem.  I want him to be successful and continue to make improvments just as much as you do.  We'll keep working together throughout the year to figure out what works, what doesn't, and what we can do to help him as well as what we can do to help him help himself.  I appreciate the feedback you have been giving.  It's very helpful especially since this is the first I have heard of CAPD."

Sometimes things like this just make me want to cry. 

Now, there's a kid that has been teasing and poking on our son in school.  This has gone on for a week already, and the school's counselor has been told NUMEROUS times about it.  They have a scrict "no bullying" policy, but don't seem to be enforcing it in this case.  Our son has gone to the counselor, like they were taught to do, to have this child dealt with.  Yesterday he called our son's shoes "gay", and that's where the line was crossed in my mind.  I've put a call in this morning to the counselor, I'm waiting on her to call me back.


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Mom2Boys
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Re: Well, we got the test results back today...

I don't know why this road must be so hard for us parents. My son is only in 1st grade, and we've already been through the wringer with bad teachers pre-first grade. Thankfully he has a gem this year, and things are turning around!

Have you tried creating a handout about CAPD for the teachers? I did that this year, and they were very grateful. Our son has an aide besides the teacher, and neither knew anything about CAPD. I think it's particularly important to point out the memory issues, and while the child may appear to be listening, so much energy is invested in translating what they're hearing, they don't have any brain memory left to store the information. For your son this is particularly a challenge since he has so many different teachers.

In the library here we have a section about classroom/home accommodations (http://capdsupport.org/Home/Classroom-A … modations/). Item #3 is a classroom handout. What I did was copy the information into Word, then customize it for our son. I pointed out what it looks like when his symptoms show up, as well as accommodations that help (like touching him on the shoulder before talking to him on the playground to make sure he knows you're talking).

Perhaps something like that will help the teachers to understand. Although some teachers are set in their ways and don't believe in learning disabilities and simply think the kids should "try harder". In that case, I would go to the principal.

As for the bullying issue, we have the same problems right now. We have done a lot to help it, and the child causing it is under scrutiny of the school, but he seems to wait until no one is watching. We just keep persisting, and we have shown up at lunch several times to watch with our own eyes so when we talk to the principal it's not just hearsay from our child. When we did that the first time, that's when the principal took it more seriously. What we have noticed in our school is the children are spoiled and not very inclusive of children who are different. There is a general intolerance, and while the school tries hard, it's challenging to undo behavior that is reinforced at home. We're seriously considering moving.

Take care,
Bonnie


Mom of 2 boys: James (6 & CAPD) and Michael (3)

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duranie
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Re: Well, we got the test results back today...

Thanks Bonnie.  Yes, in fact I did give them that info at the beginning of the school year via emails.  I was even thanked for doing so.  What I think these people need to realize is that the CAPD is not a HEARING issue but an UNDERSTANDING issue.  They think because he seems to be hearing them fine, that everything is kosher.  Well, news flash people, it's NOT!  The book "When The Brain Can't Hear" details why it's harder for CAPD kids to take effective notes...

"Note-taking requires a division of attention between auditory and visual modalities.  When attention is focused on writing down infomration, less is available for listening to and comprehending the information in the first place.  As a result of this division of attention, the child may neither hear the information nor write good legible notes.  In addition, for children with certain types of APD, note-taking relies on those very skills with which the child has great difficulty."

This is our son's problem, he can't take listen, write the notes, and understand at the same time.  It's the auditory memory part of his issue that hinders him.  Heck, he's got all these teachers that do things differently, how can we expect him to remember which teacher wants him to find his own information, and which teacher wants him to use provided notes, or look back on past worksheets? That's the biggest problem I'm having right now.  I watch the homework every day, and I see the tests and quizzes with his progress reports.  Believe me, if I see a C on anything, I question it. 


Diana


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Mom2Boys
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Re: Well, we got the test results back today...

Diana,
I would ask the school to give your son an accommodation on this one. Any oral instruction must be provided in written form. I'm sure some of the teachers aren't going to be happy, but this is what they'd do for a deaf child. Our son has an accommodation that is similar, although he can't read yet, so in addition to writing directions he gets an aide to read it to him. He also struggles with writing, although his is dysgraphia so more a motor planning issue, and he has an accommodation that tests like spelling tests he can give the answers orally instead of writing. They pull him from the room to do it.

You might also ask in cases where the class is noisy and distracting if your son could do that portion of the work in an RSP (resource specialist) room. My nephew does that for classes that have independent work because the quiet makes it easier for him to focus.

Now that you have the diagnosis, hopefully you'll get at least a 504 if not an IEP. In both cases accommodations go with it, and they have to provide what helps your son perform up to par. If he's lagging behind, that's a sign they need to provide an accommodation.

HTH,
Bonnie


Mom of 2 boys: James (6 & CAPD) and Michael (3)

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duranie
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Re: Well, we got the test results back today...

Hi Bonnie.  Yeah, we have a 504 already, we had that meeting a little over a week ago.  Part of the 504 is that he gets is that "the teacher should reinforce verbal information with the addition of visual information, verbalization, written instructions and/or modeling the activity and gestures." What this one teacher didn't understand is that our son needed to be told WHERE to get the information, or at least asked if he knew where he should get it.  He didn't do that.  That's why I got angry. 


The "bully" is suppose to be talked to either today or Monday.  The counselor asked him if he wanted to be in on the meeting, and he said "yes, definitely".  GOOD BOY!  He wants to make sure this kid doesn't lie.  I've taught him well :>)



Diana


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